Fortunately, I am learning a lot, and things seem to ever so slowly be moving in the right direction. For example, Isaac's lunch box is coming home with food in it, so I know he is not having to throw it away. Granted, stuff is coming back because he is not eating fast enough, but that is an issue we can teach him about and a goal to improve on his eating time. The other big improvement is that while one child's class used pink marshmallows for math, Isaac's class mixed red and white paint to make pink. The great thing was that he could tell me all about the activity, recreate it, and he did not have a night terror last night.
Yes, Emerson is having major come apart at night from over stimulation. Once again, this is a workable goal. Isaac is still getting strikes for "spacing out." I know, from being taught, that this is his way of disassociating. Now the next step is to educate those who work with Isaac about what is going on so that he (and they) can recognize when he is triggered and work to minimize these incidences.
I have also gotten loads of wonderful support and advice from other parents who have been down this road. Friday the whole team and I will sit down for an IEP meeting. My goals are as follows:
- Those who work with Isaac will know about trauma and disassociation and rage and will work to minimize triggers in the classroom so that he is able to be present with his work and learn from the lesson.
- Those who work with Isaac will know how to safely re-engage him and/or deal with a major trauma rage.
- Food will stop being used for Isaac as a reward or punishment, and instead he will be able to receive a small toy or sticker.
Three is a big one for him. Isaac was nearly starved to death by four different set of caregivers. It was not because he was good or bad. Sometimes it was because there was not enough food, or people to feed the kids, or because the caregivers made bad choices. It was never because Isaac was bad. I feel strongly that when he is told he gets food because he was good, or does not get food because he was bad at school, this sends him a very wrong message about his past.
Here is to baby steps in the right direction.
So impressed at how you are handling all this,Karon. Hoping the IEP goes really well. I can give you the name of a good special ed atty if you need one. (Catherine Findley)
ReplyDeleteYou are one AMAZING Mama Karon... you truly are and NEVER forget it, no matter how tough it gets! Hang in there and good luck at the the IEP meeting. I have mine at the end of this month for Henry and I am already making my lists of what I want changed on his IEP for this year in kindergarden. ((HUGS))
ReplyDeleteGlad that things are slowly improving. This is my greatest fear with Irina as well - that school will somehow break her spirit that we have spent so much time nurturing. In fact, she has been having 'accidents' at her 2nd preschool daily again and I don't know why as she NEVER has accidents anywhere else. I just get blank stares from the teachers there when I ask them about it. I think that they are either ignoring her when she asks to go (or not understanding her) as she won't just go without permission or they have yelled at her for playing in the bathroom sink or something so now she won't go in there until it is too late. Either way - it is frustrating to have something happen in a place where I as a parent have so little control.
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